One thing I should mention is the cost. All the tests do not come cheap, at all. Most people probably wouldn't have spent what we have (and continue as ours seems to have an autoimmune disorder of some type which could be the cause of the meningits and encephalitis). We have spent just over $11,000 to this point
Alot of people do opt for the pheno to control the seizures, and if that's all you can afford to do, you just do the best you can
"Obey my dog!" - Mugatu
"Who can believe that there is no soul behind those luminous eyes!" ~ Theophile Gautier
"Dogs are not our whole life, but they make our lives whole" - Ok... whoever said this has never had a sick or special needs baby. They ARE our whole life!
R.I.P. my sweet, handsome Thorin. You are missed dearly Dec. 25, 1999 - Mar. 4, 2012