If you want to compare notes or ask questions, please feel free to PM me. If you can't PM me for some reason, let me know and I'll ask a mod to set it up for you. I looked all over the internet for anyone who was going through something similar, but with no luck at all. It was scary, and very frustrating. I don't know if any of the info I have will help, but I'm more than willing to share in hopes you may get something out of it to take to your vet (most vets are just not able to do much as these disorders are so rare).
"Obey my dog!" - Mugatu
"Who can believe that there is no soul behind those luminous eyes!" ~ Theophile Gautier
"Dogs are not our whole life, but they make our lives whole" - Ok... whoever said this has never had a sick or special needs baby. They ARE our whole life!
R.I.P. my sweet, handsome Thorin. You are missed dearly Dec. 25, 1999 - Mar. 4, 2012